Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Proche-aidant.e, Voices of NMO
ADELAIDE Her mother, dying on the bed next to her, asked Adelaide for a sip of water. As Adelaide moved to get up, the left side of her body felt […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Ashlee. Thank you for taking the time to read my story. I’m not really sure where to begin and I’ve never publicly shared my NMO story before […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
One morning in October of 2013, I remember feeling a sharp pain in my right eye when I would try to read and the letters were very blurry. It was […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
In early November 2000, Nick came down with viral symptoms. He was just done eating dinner when he vomited across the kitchen – I was shocked. Up to this point […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Neuromyelitis Optica – a rare disease that appeared out of the blue and had a mission to suck the life out of my dear sister. At first we thought that […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was 7 years old and after a normal school day, I noticed blurred vision in my left eye. As a very active and healthy child, this was unusual and […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
It was mid-August. We were leaving Mass General Hospital. I’d been discharged after almost a week’s stay. I was just diagnosed with NMO. It was merely an acronym;the meaning hadn’t […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
It began like a pain unlike any other. In 2009, and during my sophomore year of college, I was sitting in class when the shooting pain down my back began. […]
Read MorePosted by: The Sumaira Foundation in Media & Press
Local Woman Launches Nonprofit for Autoimmune Disease The Sumaira Foundation seeks to raise awareness of neuromyelitis optica, which affects the spinal cord and optic nerves. By Andrea Timpano | Hub […]
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