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Les MOGAD et NMOSD chez l’enfant et adolescent

Virtual: France , France

Rejoignez-nous le mardi 14 mars pour le prochain webinaire "From the Experts" de TSF en français avec Dr. Kumaran DEIVA, neuro-pédiatre à Paris, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. Les participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire […]

TSF Book Club | “Shifting Into High Gear” by Kyle Bryant

Virtual: United States , United States

You're invited to join TSF's next book club meeting on March 14th , during which we'll discuss "Shifting Into High Gear" by Kyle Bryant. Shifting Into High Gear charts the course of Kyle Bryant's transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich's ataxia, a life-shortening and disabling disease. […]

TSF’s Human Collective Project Meetings

Virtual: United States , United States

The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

NMOSD, MOGAD en MS: Overeenkomsten en Verschillen

Virtual: Global

Neem vrijdag 17 maart van 20.00-21.00 uur deel aan het allereerste Nederlandstalige webinar “In gesprek met deskundigen” (“From the Experts”). Dit webinar wordt georganiseerd door de Sumaira Foundation. Dr Barbara Willekens zal spreken over overeenkomsten en verschillen tussen NMOSD, MOGAD en MS. Dr. Willekens is als neurologe verbonden aan het UZA, het Universitair Ziekenhuis Antwerpen. […]

Le Projet Collectif Humain

Virtual: France , France

The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le […]

2023 Virtual Legislative Lobby Day

Virtual: United States , United States

Join autoimmune patient advocates nationwide on March 29, 2023, for the National Coalition of Autoimmune Patient Groups’ first virtual Congressional Fly-in Day. Advocates will meet virtually with legislators and staff […]

TSF’s Human Collective Project Meetings

Virtual: United States , United States

The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Het Human Collective Project

Virtual: Amsterdam , Netherlands

Op dinsdag 31 maart om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren. U bent […]

TSF’s Patient Day for NMOSD/MOGAD in Dallas

Marriott Uptown Dallas 3033 Fairmount St, Dallas, TX, United States

TSF is inviting all NMOSD/MOGAD patients, caregivers, friends and family in Texas to join us for an exclusive meetup! In collaboration with Dr. Benjamin Greenberg at UT Southwestern Medical Center, The Sumaira Foundation is organizing a special event dedicated to NMOSD/MOGAD patients, caregivers and clinicians on Saturday, April 1st, 2023 at the Marriott Dallas Uptown. […]

TSF’s Human Collective Project | Danmark

Virtual: Danmark , Denmark

The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]

Pediatric MOGAD & NMOSD

Virtual: United States , United States

You're invited to attend "Pediatric MOGAD & NMOSD" on Wednesday, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children's Hospital of Philadelphia, Professor of Neurology and Pediatrics, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine, University […]

Meet the Author | Kyle Bryant, “Shifting Into High Gear”

Virtual: Global

TSF is pleased to invite you to an exclusive "Meet the Author" fireside chat between Sumaira and Kyle Bryant, an author, athlete, speaker, and spokesperson for Friedreich's Ataxia Research Alliance (FARA). "Shifting Into High Gear" charts the course of Kyle's transformation as he journeys on a recumbent tricycle across the United States in the throes […]

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