Rejoignez-nous le mardi 14 mars pour le prochain webinaire "From the Experts" de TSF en français avec Dr. Kumaran DEIVA, neuro-pédiatre à Paris, qui parlera et répondra aux questions sur la NMOSD pédiatrique et la MOGAD. Les participants auront la possibilité de poser des questions au Dr Deiva en direct et en français. Le webinaire […]
You're invited to join TSF's next book club meeting on March 14th , during which we'll discuss "Shifting Into High Gear" by Kyle Bryant. Shifting Into High Gear charts the course of Kyle Bryant's transformation as he journeys on a recumbent tricycle across the United States in the throes of Friedreich's ataxia, a life-shortening and disabling disease. […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 […]
Neem vrijdag 17 maart van 20.00-21.00 uur deel aan het allereerste Nederlandstalige webinar “In gesprek met deskundigen” (“From the Experts”). Dit webinar wordt georganiseerd door de Sumaira Foundation. Dr Barbara Willekens zal spreken over overeenkomsten en verschillen tussen NMOSD, MOGAD en MS. Dr. Willekens is als neurologe verbonden aan het UZA, het Universitair Ziekenhuis Antwerpen. […]
The Human Collective Project (HCP) est la réunion du groupe de soutien de TSF offerte à toute personne affectée par la NMOSD ou la MOGAD. Le programme a vu le jour au plus fort de la pandémie de COVID-19 en 2020, lorsque la plupart des patients NMOSD/MOGAD se sentaient particulièrement isolés et vulnérables au coronavirus […]
Join autoimmune patient advocates nationwide on March 29, 2023, for the National Coalition of Autoimmune Patient Groups’ first virtual Congressional Fly-in Day. Advocates will meet virtually with legislators and staff to discuss important issues, including improving patient access and research funding. Whether you’re a veteran advocate or looking to get involved in legislative advocacy for […]
The Human Collective Project (HCP) is TSF’s support group meeting offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020, when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
Op dinsdag 31 maart om 19:00 organiseert de Sumaira Foundation de eerste Nederlands en Vlaamse online bijeenkomst voor mensen met NMOSD of MOGAD en hun familieleden en/of dierbaren. U bent van harte welkom om deel te nemen en ervaringen uit te wisselen en elkaar te ondersteunen in een veilige omgeving. Aanmelden voor deze bijeenkomst kan […]
TSF is inviting all NMOSD/MOGAD patients, caregivers, friends and family in Texas to join us for an exclusive meetup! In collaboration with Dr. Benjamin Greenberg at UT Southwestern Medical Center, The Sumaira Foundation is organizing a special event dedicated to NMOSD/MOGAD patients, caregivers and clinicians on Saturday, April 1st, 2023 at the Marriott Dallas Uptown. […]
The Human Collective Project (HCP) is TSF’s support group meetings offered to anyone who has been affected/impacted by NMOSD/MOGAD. The program came into existence during the height of the COVID-19 pandemic in 2020 when most NMOSD/MOGAD felt particularly isolated and vulnerable to the coronavirus as immunosuppressed/immunocompromised members of society. The isolation many of us experienced […]
You're invited to attend "Pediatric MOGAD & NMOSD" on Wednesday, April 12th at 12:00 PM EDT featuring Dr. Brenda Banwell, Chief of Child Neurology and Co-Director of the Neuroscience Center at the Children's Hospital of Philadelphia, Professor of Neurology and Pediatrics, and Grace E. Loeb Chair in Neuroscience at the Perelman School of Medicine, University […]
TSF is pleased to invite you to an exclusive "Meet the Author" fireside chat between Sumaira and Kyle Bryant, an author, athlete, speaker, and spokesperson for Friedreich's Ataxia Research Alliance (FARA). "Shifting Into High Gear" charts the course of Kyle's transformation as he journeys on a recumbent tricycle across the United States in the throes […]
