Posted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was diagnosed with Neuromyelitis Optica in June of 2012 after two hospitalizations totaling 5 months, during which I lost all my strength, ability to move and all feeling from […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
The Diagnosis My NMO journey started after my 29th birthday in January 2016. I had a headache that would not go away. It was unlike anything I had experienced before. […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Dionne, a vibrant 46-year old, former nurse, mother of 2 from New Orleans, Louisiana who has been living with NMO since 2009. Click below to watch Dionne share her […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
Meet Megan, a 16 year old NMO patient who and YouTube sensation (@PerfectlyKnitBeauty) who has been coping with her chronic illness through the use of makeup. We laud her courage, […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
My name is Jamie and I am Adam’s partner of 17 years. This is Adam’s NMO story from my perspective… Everything was perfect in our lives; Adam had a good […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
February 1st, 2011 – I began having vision problems in my left eye and a few days later, it got drastically worse. I went to the Mass Eye and Ear Infirmary’s […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I have never been a person that likes to sit still; I don’t even like going to the movies. If it was up to me, I would run from location […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My life changed eleven years ago when I was diagnosed with NMO. To this day, I still have moments where I reflect back on my story and feel every ounce […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Since she already had been diagnosed with lupus, Raynaud syndrome, and Sjogren’s syndrome, Adria didn’t think much about the tingling in her hands that started in February of 2016. Besides, […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was diagnosed with Neuromyelitis Optica Spectrum Disorder (NMOSD) in November 2013. My symptoms started June of that year with my toes going numb, shortly after returning from a cruise […]
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