Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Freshman year of college is a time to form your sense of identity, but when I started school, I thought that forming this ‘new’ me meant dying my hair blue, […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, TM, Voices of NMO
Maureen is a nurse. She worked in neurocritical care at Johns Hopkins Hospital for many years before she had ever heard of NMO. But in 2007, shortly after Dr. Benjamin […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
It started with a never-ending headache… Click the image below to watch Chasity’s video in which she describes her experience with optic neuritis. Although she has lost a significant amount […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My name is Letitia and I am a 22-year-old South African NMO patient. My story began on the 26th of December 2017, Boxing Day… I had been suffering with an […]
Read MorePosted by: The Sumaira Foundation in Proche-aidant.e, TM, Voices of NMO
Addison “Addie” Havens was a healthy two year-old little girl full of energy and spunk who loved to play with her big brother… The weekend of January 29, 2016 began […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Proche-aidant.e, Voices of NMO
Virginia was only 10 when, while checking the mail one day in April, she noticed a grayness in her vision, “like leaves creeping up from the bottom of my eye.” […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
I was 33 years old in 1993, when I experienced a sudden attack of optic neuritis, an inflammation that damages the optic nerve causing vision loss. A small black dot, […]
Read MorePosted by: The Sumaira Foundation in MOG, ON, Voices of NMO
It was the late 1990’s. I was in my 30’s had constant pain down my left arm, and even though I couldn’t tie the symptoms down to any single event, […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, TM, Voices of NMO
I have a rare, chronic neurological disease that affects my central nervous system. It’s caused me to become temporarily half-blind and feel throbbing pain everywhere… I was diagnosed with Neuromyelitis […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank […]
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