Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
My NMO journey began in 2018. It was Martin Luther King Day. I was visiting my parents for the weekend. When I got up in the morning, I remember looking […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
It all started with an itch at the back of my neck that continued for about three weeks without any sign of a rash or anything that could be causing […]
Read MorePosted by: The Sumaira Foundation in Nouvelles et annonces
28 février 2023 – The Sumaira Foundation (TSF) annonce la création et le lancement de TSF France, apportant un soutien supplémentaire indispensable à la communauté française touchée par la NMO […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Els is ambassadeur voor de Sumaira Foundation, die opkomt voor de belangen van mensen met NMOSD en MOGAD. Zelf kreeg ze begin 2022 de diagnose van NMOSD. Ik werd in […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Une double peine […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Mi nombre es Yaracelly Gaona, soy panameña, estoy casada, tengo 35 años y una hija de 7 años. A mis 28 años, días de dar a luz, presente dolor en la región dorsal […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Le 6 octobre 2014, le jour où ma vie a pris une nouvelle voie pour poursuivre son chemin. Le jour où j’ai commencé une cohabitation avec une maladie rare… À […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
I was a young resident at the University of Verona’s, Neurology Unit when I met a woman with rapidly evolving extensive myelitis. I first thought about NMOSD and asked our […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e
On April 29, 1984, I landed at Boston’s Logan Airport with two suitcases and a seven-year-old girl holding my hand. This trip concluded a process that had begun three years […]
Read More
