Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, TM, Voices of NMO
It all started when I was 20 years old – I went to urgent care because I was experiencing excruciating pain in my upper back to the point of tears. […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
This is a story of how a warrior is made. I have been gifted with the job of being this warrior’s mother and I am proud to share her story. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her […]
Read MorePosted by: The Sumaira Foundation in NMO, Proche-aidant.e, Voices of NMO
Chelsey Judge, PhD, is a scientist with a particular interest in immunology. She also happen to be the sister of an NMO patient. Chelsey shares her Voices of NMO™ story […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
April Fools’ Day jokes are supposed to be funny. However, the one my parents thought I was playing two years ago, was most definitely not. I’m not pulling your leg […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
In February 2019, I received an NMOSD diagnosis after nearly 11 years of being treated for multiple sclerosis… I think when you are diagnosed with a chronic disease, knowing who […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Is it unreasonable to call a woman who comes down with a rare autoimmune disease lucky? What about two autoimmune diseases? It may seem strange, but Eleanor considers herself lucky. […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease […]
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