Tag: rare disease
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The Sumaira Foundation
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You’re invited to join TSF’s next book club meeting on March 14th , during which we’ll discuss “Shifting Into High Gear” by Kyle Bryant. Shifting Into High Gear charts the course of […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Bonjour à tous, je m’appelle Fatiha. J’habite à Étalleville en Normandie. Je suis tombée malade le 20 février 2016. Date anniversaire de la mort de mon père. Une double peine […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Le 6 octobre 2014, le jour où ma vie a pris une nouvelle voie pour poursuivre son chemin. Le jour où j’ai commencé une cohabitation avec une maladie rare… À […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Hello fellow NMO sisters and brothers. My name is Roxana aka “Roxy”. I was diagnosed with NMO in June 2011 when I was 17 years old. The first symptom I […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Bonjour à tous, je m’appelle Elodie. J’ai prochainement 37 ans. J’habite à Orp-Jauche, Brabant wallon, Belgique. En 2008, j’ai fait ma première poussée. Une nevrite optique. A l’époque, j’avais été […]
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The Sumaira Foundation
in NMO, Patient.e
On April 29, 1984, I landed at Boston’s Logan Airport with two suitcases and a seven-year-old girl holding my hand. This trip concluded a process that had begun three years […]
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The Sumaira Foundation
in MOG, NMO, Professionnels de santé, Voices of NMO
It was over a decade ago, but I remember it like yesterday, the first patient I looked after with NMOSD. Actually, there were two of them in the same neuroimmunology […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
I was born and raised in Cuba where I played outside, ran, and enjoyed time with my friends. In my healthy teen years, I didn’t think I’d ever become chronically […]
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Posted by:
The Sumaira Foundation
in MOG, Patient.e, Voices of NMO
Every day we wake up, we surely never expect our day to end with everything turned upside down – and our life changed forever. But it is exactly what happened […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
While I was pregnant, I began having blurred vision. I went to see ophthalmologists, opticians, and general practitioners, but they kept saying nothing was wrong. I was sent to see […]
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