Tag: rare disease
Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Hi, my name is Noelani. I am 30 years old, was born and raised in Hawaii but currently reside in Nevada! Looking back, there were signs throughout my childhood of […]
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The Sumaira Foundation
in NMO, Voices of NMO
It started innocuously. In 2008 we moved to Ottawa with my employer for my career in pest control. On a gray, cloudy but humid day, I was out removing a […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
In August 2019, while at work, I began to notice a change in my right eye. I thought it was the contacts I was wearing, so I removed them. Still, […]
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The Sumaira Foundation
in MOG, Patient.e, Voices of NMO
Clean and clear were my glasses but still I had trouble seeing clearly with my right eye. On Easter Monday in 2019, my vision deteriorated and by the end of […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
A native Portuguese speaker and resident of Denmark, Leda wrote her story in English, Portuguese, and Danish. Please scroll down to read Leda’s story in Portuguese and/or Danish. In 2018 […]
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The Sumaira Foundation
in Nouvelles et annonces
March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Part I and II of this story were originally published in 2015 by NMO Stories, presented by The Guthy-Jackson Foundation and the Connor B. Judge Foundation. It was shared again […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
My name is Pauline Richardson nee Grant. I grew up on a farm in Jamaica. My mom, being a cheerful giver, would invite people over all the time, always making […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
December of 2020 started perfectly. I recently accepted my first job offer after completing my undergraduate degree and anticipated my start date in the new year… In the second week […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
My name is Hali and I am a 19 year old Scottish Law student living with NMOSD. — It all began in August 2021 when I developed a rash on […]
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