Tag: rare disease
Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Born and raised in Tokyo, Mamiko Sakaida always loved singing and wanted to become an opera singer. In pursuit of her making her dreams come true, she studied opera in Bologna, Italy, […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
My name is Christy and I’ve been fighting this disease without knowing what I was up against since before 2008… I started calling this thing my “venom” because it reminded […]
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The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO
Jarrie grew up on a farm and declares himself a simple man. I think otherwise. I think Jarrie is a man for whom love is simply enough. Jarrie married his […]
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Posted by:
The Sumaira Foundation
in Nouvelles et annonces
November 22, 2021 – The Sumaira Foundation is pleased to welcome Professor Romain Marignier as the 1st international NMO specialist to join TSF’s medical advisory board. Romain Marignier, MD Pr. […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
My name is Shanice. I was born and raised in Jamaica and now reside in Toronto in Canada. I am a second-year medical student aspiring to be a physician in […]
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The Sumaira Foundation
in NMO, Voices of NMO
Tiffany was a military brat with both of her parents serving in the Navy, so joining up herself seemed the obvious choice for her. She enlisted in 2006 and met […]
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The Sumaira Foundation
in NMO, Voices of NMO
My name is Mary Lou Gallegos. I was born and raised in San Antonio, Texas. I am the co-owner/founder of SA Perks L.L.C Detox Juices and Tonics. I am […]
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The Sumaira Foundation
in NMO, Uncategorized, Voices of NMO
My NMO journey started just a few weeks after having my first baby girl in August 2020. Being a first time mom, I had no idea what postpartum should look […]
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Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
My first NMO symptoms hit three years ago when I was 9; I’m 12 now. To be fully transparent, I don’t actually fully remember that time very clearly. In January […]
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Posted by:
The Sumaira Foundation
in NMO, Proche-aidant.e, Voices of NMO
August 29, 2017 will forever be embedded in my mind because it was the day my 9 year old daughter, Bella, woke up sick. It was the day that would […]
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