Tag: rare disease
Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
I am no stranger to rare diseases. At 17, I was diagnosed with Toxoplasmosis. At 22, Phyllodes tumors. Chiari Malformation I at 26. It was not until 2017, when I […]
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The Sumaira Foundation
in NMO, Voices of NMO
The first time NMO hit me was on the evening before Thanksgiving in 2010… I clearly remember it because my wife and I were on holiday in the United States. […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
The differential diagnosis: It is a skill we learn early in medical school and it is designed to guide the clinician on considering the possible underlying causes of a patient’s […]
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Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
My name is Allison and I am a married, busy mom of three children (17, 12 & 12 years old). My NMO journey started approximately seven years ago, when I […]
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The Sumaira Foundation
in NMO, Voices of NMO
Nicole was a first-grade teacher and chorus director in a Title 1, low-income school district, where she was a beloved, appreciated, and award-winning professional… In May of 2017, Nicole thought […]
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Posted by:
The Sumaira Foundation
in NMO, Voices of NMO
My name is Ryan. Three years ago, I was living the dream. I was happily married to my best friend, and we have three beautiful and perfectly healthy children. We […]
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Posted by:
The Sumaira Foundation
in MOG, Voices of NMO
It was the Friday before Halloween in 2018. Anthy was on her way home from work when she called her husband to see if she needed to pick up anything […]
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Posted by:
The Sumaira Foundation
in MOG, Proche-aidant.e, Voices of NMO
When your daughter suddenly goes blind in one eyes, you feel helpless. When the doctors don’t know what it is or why it happens, you feel frustrated. When this happens […]
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Posted by:
The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
On the evening of Sunday, 17th January 2010, my mother was putting up a fight with my brothers and I to go to bed while we were chasing each other […]
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Posted by:
The Sumaira Foundation
in NMO, ON, Patient.e, Voices of NMO
My name is AnneMarie and my journey with NMO began in 2002 when I was just 16 years old… One April morning, I woke up with a stabbing pain in […]
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