Posted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Imagine this: You’re driving on a highway, and suddenly, your hands stop working completely. You can’t grip the wheel. Imagine the terror and the confusion… And then imagine, that, thank […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
Life before NMO – I was an active mom, worked as a home health nurse case manager and an avid marathon/half marathon runner… Before work, I would wake up at […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Proche-aidant.e, Voices of NMO
My name is Veronica and this is my NMO story. I am not a patient but a mother/caregiver of an NMO patient. I have always been in a way, made […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Back in 2013 and 2014, I completed two 100km walks to raise money for Oxfam – something I am so proud to have done! BUT in 2016, when I tried […]
Read MorePosted by: The Sumaira Foundation in MOG, Patient.e, Voices of NMO
Now that I have been diagnosed with Myelin Oligodendrocyte Glycoprotein Antibody-Associated disease, or MOG-Ab disease, I have met others who are afflicted and have listened to their stories. They all […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
She thought it might be her fault. After all, she was working 14-hour days driving a truck, going to school full time and caring for a young son on her […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
Greetings Everyone, I’m Shiela Marie Sta. Maria Rutaquio, from Binangonan, Rizal 1940 Philippines, who have this rare and incurable autoimmune disease called NMOSD (NEUROMYELITIS OPTICA SPECTRUM DISORDER), a demyelinating disease […]
Read MorePosted by: The Sumaira Foundation in MOG, NMO, Professionnels de santé, Voices of NMO
Like many physician-researchers in my field, I spend a lot of time thinking about NMO, both inside and outside of the clinic. The science of NMO is fascinating to me […]
Read MorePosted by: The Sumaira Foundation in NMO, ON, Patient.e, Voices of NMO
My NMO story started about 15 years ago. I was a sophomore in high school and was just released for summer break… The very next day, I started to feel […]
Read MorePosted by: The Sumaira Foundation in NMO, Patient.e, Voices of NMO
I was a 26 year old working in the Pentagon in the Navy Executive Dining Facility. I was Active Duty Navy for almost 8 years… On October 18, 2017, I […]
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