Tag: rare disease
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Hello! My name is Joyce and I am from Pittsburgh, Pennsylvania. My NMO symptoms started with loss of bladder control, stress inconvenience, irritable bowel with constipation, and sensation loss in […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
I’m Ilene, the youngest of seven children. I come from a family of school teachers and musicians. I love board games, musicals, plays, happy movies, skeet ball, Tower of Terror […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
On Monday morning, Pam had a headache. For a woman who never got headaches, this was notable. In addition, when she turned her eyes right and left, she experienced eye […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Nothing can fell Marie. No matter the punches that NMO throws, Marie just gets up again and keeps on going. A strong young woman who has learned to live with […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Jamie was diagnosed with Non-Hodgkins Lymphoma at the age of 35. Her condition was such that she didn’t need treatment, just monitoring. She was even healthy enough to have a […]
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The Sumaira Foundation
in MOG, Patient.e, Voices of NMO
My entire life, I was always a healthy and energetic person… I have played tons of sports and never went to the doctor unless it was for a sports physical. […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Sumaira’s NMO Story From the Transverse Myelitis Association blog, In Their Own Words (October 4, 2018) My name is Sumaira and I am the founder and executive director of The Sumaira Foundation […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Here is my story of how I was diagnosed with Neuromyelitis Optica and just how scary it can be knowing that something is wrong but not being able to find […]
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The Sumaira Foundation
in NMO, Patient.e, TM, Voices of NMO
Paula is a walking miracle. She looks good, feels good and can do most everything she ever did in her life, though she is now eligible for senior discounts. […]
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The Sumaira Foundation
in NMO, Patient.e, Voices of NMO
Meet the happy workaholic, Kelly Ann, an ambitious business + LinkedIn coach, podcaster and luxury brand consultant from California who candidly shares the ups and downs of her NMO story […]
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