Posted by: The Sumaira Foundation in Nouvelles et annonces
March 10, 2022 – The Sumaira Foundation (TSF) is pleased to announce the launch of “Imagine My Life With NMO,” a video series showcasing the experiences of people living with neuromyelitis optica (NMO) around the world.
The series follows Sumaira Ahmed, TSF founder, as she interviews patients, their loved ones and doctors to understand the actual lived experience with NMO in different countries and regions. The episodes unveil the realities of diagnosis, treatment, and learning to live with this rare disease. The purpose of this series is to elevate awareness of neuromyelitis optica to a wider audience and shed light on the disease and its patient community.
In the pilot episode, Sumaira travels to Munich, Germany, where she meets Matthias Fuchs, an engineer in the automotive industry and NMO patient. In this interview, Matthias shares the days leading up to his NMO diagnosis, how his life has changed, and what he is looking forward to with his newfound role in global advocacy.
Click to watch the full episode on YouTube
“Imagine My Life With NMO” is produced by Heartwork Productions on behalf of The Sumaira Foundation with support from Horizon Therapeutics.
